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Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

Edited by: David G. Kirchhoffer, Bernadette J. Richards

ISBN13: 9781108491907
Published: October 2019
Publisher: Cambridge University Press
Country of Publication: UK
Format: Hardback
Price: £93.99
Paperback edition , ISBN13 9781108741309



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Respect for autonomy has become a fundamental principle in human research ethics. Nonetheless, this principle and the associated process of obtaining informed consent do have limitations. This can lead to some groups, many of them vulnerable, being left understudied.

This book considers these limitations and contributes through legal and philosophical analyses to the search for viable approaches to human research ethics. It explores the limitations of respect for autonomy and informed consent both in law and through the examination of cases where autonomy is lacking (infants), diminished (addicts), and compromised (low socio-economic status). It examines alternative and complementary concepts to overcome the limits of respect for autonomy, including beneficence, dignity, virtue, solidarity, non-exploitation, vulnerability and self-ownership. It takes seriously the importance of human relationality and community in qualifying, tempering and complementing autonomy to achieve the ultimate end of human research - the good of humankind.

Subjects:
Medical Law and Bioethics
Contents:
Introduction. The limits of respect for autonomy David G. Kirchhoffer
Part I. Exploring Problems of Respect for Autonomy in Bioethics, Law and Society:
1. Autonomy and the law: widely used, poorly defined Bernadette J. Richards
2. Lack of autonomy: debates concerning research involving children Thomas H. Murray
3. Diminished autonomy: consent and chronic addiction Steve Matthews and Jeanette Kennett
4. Compromised autonomy: social inequality and issues of status and control S. Stewart Braun
Part II. The Search for Alternative or Complementary Concepts Surrounding Autonomy:
5. Self-ownership in research ethics Garrett Cullity
6. Beneficence in research ethics David G. Kirchhoffer, Christi D. Favor and Christopher D. Cordner
7. Dignity, being and becoming in research ethics David G. Kirchhoffer
8. Virtues in research ethics: developing an empirically-informed account of virtues in biomedical research practice Justin Oakley
Part III. Beyond Autonomy: Turning to the Community to Protect the Individual:
9. Duties of shared membership in research ethics José Miola
10. Engaging communities in human research in the Global South Anita Ho
11. Reducing shared vulnerabilities to data misuse Wendy Rogers.

Series: Cambridge Bioethics and Law

Consent for Medical Treatment of Trans Youth ISBN 9781009077958
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Consent for Medical Treatment of Trans Youth ISBN 9781316514207
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Reimagining the Court of Protection: Access to Justice in Mental Capacity Law ISBN 9781108834421
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Sharing Linked Data for Health Research: Toward Better Decision Making ISBN 9781108426640
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International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence ISBN 9781108489775
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Solidarity and Justice in Health and Social Care ISBN 9781107069800
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Property in the Body: Feminist Perspectives 2nd ed ISBN 9781316613740
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Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy (eBook) ISBN 9781316732427
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Regulating Patient Safety: The End of Professional Dominance? ISBN 9780521190992
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The Global Health Crisis: Ethical Responsibilities (eBook) ISBN 9781108117746
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Solidarity in Biomedicine and Beyond (eBook) ISBN 9781108105606
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Solidarity in Biomedicine and Beyond ISBN 9781107074248
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Empirical Bioethics: Practical and Theoretical Perspectives ISBN 9781107078475
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